I will be so very glad when it decides to stop raining. Took Taylor to school yesterday and i ended up carrying him all the way there as it was torrential rain and he would have been soaked if I'd have walked him down. I picked him up and ran like mad!!! Not so bad going to school as it's all down hill lol. On the way home at dinnertime i made him walk and he jumped in every single puddle possible. Even one that came up to his knees!! Of course it's raining again today so he wanted me to pick him up and run to school with him again but i said no and made him run down with me himself. He laughed all the way there and as soon as we got through the doors he took his coat off and threw it at me!! I went and hung it up and when i came back he ran into his classroom and gave Mrs Seddon (his class teacher) a big cuddle and asked if he could play on the computer. I was shocked but really happy he did it because it shows that he likes her.
The school is pretty much dead today as it's Eid and all the Asians are off for the day. Taylor should like it in the classroom today with it being quiet. I bet he spends most if not all of the morning in there with it being quiet. I think there's about 6 kids in there including Taylor!!! We still aren't any nearer to finding out when he will be going a full day or even just for dinners yet but i have to go and see Ailsa (behavioural psychologist) at Holly House tomorrow at 9.30am so i will take his statement with me and show her and see what she says. I was talking to another woman on Friday at school and her little boy has Downs Syndrome and he is still coming home at dinnertime too but is statemented for a full days funding and support (like Taylor). She was saying that Mary (special needs health visitor) from Holly House went nuts when she found out and arranged a meeting with school for Monday afternoon (i haven't seen the woman since to find out how she got on) as if the kids are funded for a full day and only getting half a day then where is the other half of the funding going to??? GOOD QUESTION!!! I don't see why the school should be getting it for not doing anything, if anything we (the parents) should be getting it as we're the ones who are having to fetch them home and look after them. I know that may sound pretty nasty as a parent but it's school's responsibility to look after them for a full day now, not ours, unless they're ill. The other woman has a baby at home to look after so i can sympathise with her, i on the other hand only have Taylor at home in the afternoons but i don't see why i should be doing their job for them and not getting paid for it. Plus in our case it's not fair on Taylor, as with Autism or any other form of ASD routine is EVERYTHING and he picks up routines very quickly and if they leave it much longer he will get used to the fact that i pick him up at dinnertime then when he does go for dinners or a full day he won't be able to cope because it's NOT his routine anymore. Trust me kids (probably adults too) with ASD hate change itself let alone a change in a routine they have built up so god help them if they don't sort it out soon.
I didn't start off on good terms with the school to begin with as i went down the week before he started and explained to them that he can't wear proper school pants due to his sensory issues. I don't know why i bothered as they were adamant that he would have to wear them sooner or later and i was to take them in and they would try to get him to wear them. I was rather annoyed so i rang Ailsa, explained to her what he was like with these pants on and she confirmed it as a sensory issue and said to go back and tell them not to force the issue of him wearing them, or tell them OK ill take the pants in and they can try and get him to wear them but be prepared for very bad behaviour through frustration or aggravation due to the pants. I went back down the day before he started and they said someone had been in to see them about sensory issues and given them a crash course on Autism and the basics so they understood better now and agreed it wasn't a good idea to make him wear them. Although i was very thankful to whoever it was that went in to see them i was absolutely livid at the fact it had to take a 'professional' to make it clear to them and i felt like they didn't believe me until it had been confirmed. I'm not an awkward parent, i just want what's best for my child and if that means he can't wear proper school pants and 'fit in' with the rest of the kids then tso be it and it shouldn't take a professional to put their foot down and say this is what's going to happen, they should believe and listen to me, after all i live with him and deal with his issues every day.
Things seem to have been picking up a lot in the last week, i signed the form yesterday for his first lot of IEPs and i am reasonably happy with them. I'm just not happy with the fact that he's still not there for dinners/full days yet. I know 3 weeks isn't a long time but if he hadn't have had ASD he would have been there a full day by now no questions asked and i feel like they are using his Autism as an excuse. I was told the other day by his support worker when i asked her about dinners "oh no we don't know yet, it could be a while yet as he pulled a kid off a chair backwards this morning because he wanted the toy the kid was playing with" OK fair comment but deal with his misbehaviour's and move on, but the way i heard that was "he can't come for dinners/full days until he learns to behave himself" well I'm sorry but if that's the case then he will probably never be there a full day as it's not just typical bad behaviour. I thought it was just me that was reading too much into what she said so i asked 5 of my friends (2 of whom don't have kids), my mum and my husband what they thought and they all said the same as me "that's not fair, they're using his ASD as an excuse"
I'm going to go through all this tomorrow with Ailsa and hopefully Sheila will be there too (she did our home video's for the early bird course) and I'm going to have a really good moan at them as that's what they're there for lol and if they think there's anything wrong they will let us know what to do next or let us know if we should get Mary involved. I like Mary and she has had a lot of dealings with Taylor so she knows what he's like. What i like best about Holly House is it's run by Social Services and what they say goes and school can't do anything about it.
That reminds me, i must remember to ask Ailsa how Taylor did on that ADOS assessment we did a while back for them, they said they'd let us know how he did the week after and i completely forgot about it!!! I also need to ring the hospital and find out his results from his DNA & Chromosomes tests as I've heard nothing at all from that. I suppose no news is good news but it's driving me mad not knowing!!!
Right well I've moaned enough for one day lol, so I'm off now to check eBay and see how much I've spent hehehe I'm xmas shopping already and I've got all sorts from the comfort and dryness of my own home lol. Take care everyone and I'll update again at weekend unless something comes up before then. xXx
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