Well I've said for a long time that people really know how to swindle us out of money where certain things are concerned (being female - that time of month is one!!) why the hell should we have to play for the things we NEED when it isn't our fault we need them. Paying more for clothes or toys because they are 'named' or 'branded' I had the shock of my bloody life today, i nearly passed out i was that horrified. We went to our local Mobility shop and looked at a kids wheelchair, it was absolutely fantastic and was strong enough to hold Dana's weight (whatever that is lol) and it would have also took my weight (just under 8stone) i couldn't believe our luck - until i saw the price. £800. Talk about 'robbing buggers' lol. I know it's not their fault (well, maybe) but once again why the hell should we have to pay that much for a child's wheelchair when it's something he needs (to a point)
Got home and told Tony, the first thing he said "please tell me you didn't" my reply was too strong to be posted!!! It went along the lines of "do you think I'm *bleeping* made of money and that *bleeping* stupid" lol. We had a look on eBay and all over the Internet and finally found a child's wheelchair, similar to another one we looked at in the shop at £306 that will take weight up to 16/18stone and it was £69 plus £11 p&p and on a buy it now, so i bought it. It's a cute dinky little thing but perfect for what Taylor needs. He doesn't particularly NEED a wheelchair, BUT...When we go out for days out (weather permitting) he will only stand walking around for so long then he gets tired or says his feet hurt and i end up carrying him or he will sit down on the floor and cry, scream or refuse to get back up again, and he is rapidly outgrowing his buggy (pushchair/stroller - depending where your from) and that results in me carrying him and he weighs approx 3stone (which feels like a tonne!!!) and it doesn't help with my back keep giving out on me. Hopefully the wheelchair will be just what we need and if all fails i will stick it back on eBay, it's brand new and i should be able to get at least £50/60 back for it (even if i loose money I'm not bothered, better than loosing £800!!!) It should be here within 2-3 working days. I'm guessing they don't class Sunday's and Monday is a bank holiday, so by my reckoning it should be here for Friday/Saturday next week. Which is good as the kids are back at school on Tuesday till Friday then Mon-Fri the week after then they have 2 weeks off for April and we can put it to the test then!!!
We had good fun yesterday. On the spare of the moment we decided to go to Blackpool to the Sealife Centre and we all really enjoyed ourselves. Taylor picked a star fish up and nearly threw it!!! A woman stopped him in time, while i stood and cringed lol. They played in the ball pit and play gym afterwards for an hour or so, then we came home.
We went to Oswaldtwistle Mills today (next door to the Mobility shop) and they spent about 2 1/2 hrs playing in there and Taylor flaked out on the sofa when we got back. We managed to get him to eat some toast and cucumber first!!! He went to bed at 6pm, woke up at 6.45pm and went back to sleep at 7.30pm.
I also got my Early Support Family File and booklets i ordered this morning. They were quick and i am really pleased with them. They came in a big box as i ordered 2 of everything!!! They were well packaged and I've been reading through some of the booklets and they seem really helpful too.
I got a phone call from Dr Khine yesterday (Taylor's Paediatrician) when we got home about 6pm. She rang regarding his Statement. They wanted a medical but she said not to bother and asked me some questions over the phone and said she'll get in touch with his speech therapist and get a report from her then send her report off to them. She does however to my horror want Taylor to go to the Hospital and have some blood tests done to test his DNA & Chromosomes etc. God only knows how he will react to that, but it has to be done. I expected them to have sent for him before now. He will be seeing Dr Khine in June/July when she has a free appointment for his 6 month post diagnosis check up. I didn't know they did them!!! According to her she does them every 6-12 months to keep her records up to date. I asked her about his hearing test, as when i shaved his head the other week he went absolutely bananas when i did around his right ear and usually he is fine. She said not to worry about it too much, worry more about loss of sensitivity to his hearing rather than hyper sensitivity at this point. She did say that if at any time i do get worried she will arrange for a hearing test asap, but I'm OK with her advice for now.
We have finally managed to get him into shoes!!! They have Thomas on them and cost me £11 but he seems to be walking a little better and doesn't complain as much during the day when he's had them on at Nursery that his feet are "brokend"!!! (sore lol) Everything at the moment is "brokend" when it's hurt or sore!!! He has been a little star over the past few days and i can't put into words how proud of him i am. He has been like a completely different child. He knows however he isn't at Nursery and he doesn't like it. He doesn't go back until Tuesday, so as long as i can keep him busy he should be fine, but i wouldn't hold my breath.xXx
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